

Global Platform

The global platform is a comprehensive online resource that provides up-to-date information about the lived experience movement. It serves as a central hub for international coordination, providing easy access to essential tools, resources, and data across the sector of lived experience.
By bringing together these critical elements, the global platform will facilitate collaboration, enhance transparency, and drive progress in the lived experience movement, ensuring that all individuals involved have the necessary support and resources to succeed.
A global database will catalogue organisations, initiatives, and opportunities within the lived experience sector. This searchable database will be organised by location and focus area, enabling users to find relevant information on advocacy groups, consumer-driven projects, peer support programs, and more. It will help connect individuals and organisations working in the field, fostering collaboration and engagement on a global scale.
Database of Organisations, Initiatives and Opportunities
This feature will include a detailed portal of individuals and professionals involved in the lived experience sector. This will provide peer workers, advocates, program designers, and other stakeholders who play a vital role in developing and implementing consumer-led initiatives. The register will serve as a networking tool, enabling collaboration and learning opportunities through the experiences and expertise of others.
Stakeholder Register
The resource repository will be a comprehensive library offering access to advocacy toolkits, best practice guidelines, case studies, and other valuable materials related to the lived experience movement. This repository will support members working on campaigns, initiatives, and programs. It will ensure that individuals and organisations have the tools and information to create impactful and effective consumer-driven projects.
Resource Repository
A cutting-edge distributed ledger will be integrated into the platform, allowing individuals and organisations to input data into a centralised system. This data will be gathered in real-time and displayed on a unified dashboard, allowing the global agency to analyse trends, monitor progress, and generate reports on outcomes. The ledger will include key metrics on membership, event participation, digital engagement, and involvement in various initiatives. The ability to monitor this data will help inform policy decisions and enable the identification of emerging trends in the sector of lived experience.
Global Data Collection and Reporting Ledger

Data Collection and Reporting Ledger
The Global Data Collection and Reporting Ledger will leverage cutting-edge blockchain and distributed ledger technology to establish a robust and transparent system for collecting and reporting data in the lived experience sector. By integrating this technology, the platform will ensure secure, real-time updates and foster transparency in data management. The ledger will serve as a central hub, enabling individuals and organisations to input their data through a shared backend system, which will then be integrated into a unified database. This centralised database will be displayed through an interactive dashboard, enabling the global agency to monitor trends, assess progress, and provide real-time reporting on outcomes.
The platform will capture a broad spectrum of data across various areas, providing a comprehensive view of the lived experience sector. Each type of organisation and initiative within the sector will collect and submit data related to the following key areas:
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Lived Experience Membership Numbers: Data on the number of individuals with lived experience participating in various organisational roles, such as peer workers, advocates, and program participants.
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Carer Membership Numbers: Information on the involvement of carers in advocacy, leadership initiatives, and support roles
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Staff Numbers: The total number of staff within organisations supporting these efforts.
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Consumer, Carer, and Staff Demographics: Insights into the diversity of the membership, including age, gender, ethnicity, geographic distribution, and other demographic characteristics.
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Website and Social Media Statistics: Data on user interactions across digital platforms, including website visits, social media likes, shares, comments, and other engagement metrics
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Email and Phone Communication Statistics: Metrics on email and phone communications, including the number of emails and calls sent, received, opened, and shared, to measure engagement and effectiveness of outreach.
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Survey and Suggestion Box Data: Information on the number of surveys conducted, response rates, and key insights gathered from suggestion boxes or community input mechanisms
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Consultation, Interview, and Focus Group Data: Data on the frequency and scope of consultations, interviews, and focus groups, including the volume and quality of responses.
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Organizational Promotion Metrics: Metrics on the reach and impact of promotional materials, including flyers, mailouts, brochures, newsletters, and public displays.
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Formal Consultation and Event Participation: Data on the number and attendance levels of various events, including workshops, forums, online discussion groups, surveys, and webinars.
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Formal Consultation Data: Statistics on the number of workshops, forums, online discussions, surveys, webinars, and participation rates.
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Conference Metrics: Data on the number of conferences organised by organisations, the participation rates, and attendance at external conferences.
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Consultation Structure Data: Information on the demographics and attendance levels for various committees, communities of practice, advisory boards, and interagency collaborations.
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Patient Feedback and Program Involvement: Data on involvement in training, educational programs, program design, and the development of informational resources.
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Co-Design Participation: Insights into the level of involvement in co-creating care plans, initiatives, and strategies with participants who have lived experience.
The data collected will be channelled into the centralised system, where it will be aggregated and displayed on a unified dashboard accessible via the global agency's website. This will enable real-time monitoring of trends, progress, and challenges organisations face. The insights drawn from this data will inform strategic decisions, guide policy recommendations, and help shape future initiatives, ensuring that the lived experience sector continues to evolve and respond to the needs of its members. The platform will provide transparency, accountability, and a secure data collection method using blockchain and distributed ledger technology. This will contribute to a more effective and efficient global network for the lived experience community.

Database Features
The databases—encompassing organisations, initiatives, resources, and stakeholders—will prioritise accessibility and inclusivity for people speaking various languages and individuals with multiple disabilities. To ensure broad usability and global outreach, the following features will be integrated:
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Multilingual Accessibility: The platform will offer multilingual support, allowing users from diverse linguistic backgrounds to interact with content in their preferred languages. This feature will be essential in fostering global engagement and ensuring no community is left out due to language barriers. Automated translations will be available for common languages, with an option for community-driven translations to ensure linguistic diversity and accuracy.
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Searchable by Location and Interest Area: a robust, user-friendly search functionality will be implemented, enabling individuals to easily find relevant advocacy and leadership opportunities, organisations, and resources based on their location, interest area, or involvement sector. The search tool will enable users to filter results by specific topics, including policymaking, education, research, community-based initiatives, peer-support programs, and other relevant areas. This ensures that users can locate relevant opportunities that align with their goals, expertise, or personal interests, regardless of their geographic or cultural context. The search function will also enable users to find resources and stakeholders by location, facilitating region-specific networking and collaboration.
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Disability Access Features: The platform will be designed with accessibility in mind, incorporating features such as screen reader compatibility, alternative text for images, high-contrast modes, and easy-to-navigate interfaces to accommodate users with disabilities. Text-to-speech functionality will assist users with visual impairments or reading difficulties. Clear, consistent navigation options will be built into the interface to help people with cognitive disabilities easily understand and interact with the platform.
By incorporating these features, the databases will offer an inclusive and accessible resource, fostering global participation from diverse communities and individuals, regardless of language, disability, or location. The ultimate goal is to ensure that all users can access information, connect with relevant initiatives, and contribute to the development of consumer-driven solutions within the lived experience sector.

Collaboration Platform
The Lived Experience Congress will meet in person thrice a year, but an ongoing digital collaboration platform will be established to foster continuous collaboration and engagement. This platform will serve as a virtual space for representatives from the six independent bodies, national networks, and other stakeholders to collaborate in real time, discuss emerging issues, share insights, and develop global policies and strategies. Some key features and functions the collaboration platform could offer:
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Real-Time Communication and Discussion: the platform will facilitate live chats, video conferences, and forum discussions to support spontaneous, real-time collaboration. This will enable members worldwide to engage in timely conversations, share updates, and collaborate on problem-solving without waiting for in-person meetings. Virtual roundtables and webinars will be held regularly to discuss emerging topics, policy changes, or specific initiatives within the sector. Live polling and feedback tools will enable real-time decision-making voting, ensuring that voices from all regions and networks are included.
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Document Sharing and Co-Editing: The platform will include tools for document sharing and collaborative editing, allowing stakeholders to work together on policy drafts, research papers, and reports regardless of their physical location. This feature will enable members to draft, review, and refine documents in real time, streamlining the policy development process and ensuring that contributions from all stakeholders are effectively incorporated. Version control will ensure all participants can access the latest revisions and updates.
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Knowledge Repository and Resource Sharing: a centralised knowledge repository will house all relevant documents, reports, case studies, best practice guidelines, and training materials, providing easy access to valuable resources for all members. The platform will enable the sharing of research, advocacy toolkits, and training resources, ensuring that members can benefit from the expertise of their peers across different regions. Searchable databases will enable users to easily locate specific resources, reports, or case studies related to particular topics or geographic areas.
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Task and Project Management: a built-in project management tool will allow members to create and manage collaborative tasks, initiatives, and projects between congress meetings. This will ensure that work continues smoothly, and deadlines are met between in-person sessions. Task assignments, progress tracking, and deadlines will be visible to all team members, helping maintain accountability and productivity. The platform will enable the tracking of milestones and reporting on project outcomes, allowing members to easily monitor progress over time.
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Engagement and Networking: The platform will host virtual networking events and meet-and-greets, enabling members to connect based on their areas of interest, region, or role within the sector. Interest-based groups will allow participants to engage with others who share similar professional or personal interests, such as peer support, advocacy, research, and policy development. It will also include interactive forums and discussion threads where members can raise questions, share experiences, and exchange advice, thereby fostering a sense of community even when they are not physically present.
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Virtual Training and Capacity Building: The platform will offer on-demand training sessions, e-learning modules, and workshops to help members develop their skills and knowledge in key areas of the lived experience movement, including advocacy, policy analysis, peer work, and mental health recovery. The training content will be designed to be inclusive and accessible to individuals with various disabilities, ensuring that the platform serves the diverse needs of all participants. Webinars and guest speaker sessions can also be held to provide ongoing learning opportunities from thought leaders and experts in the field.
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Global Policy Collaboration: global policy development will be a continuous, collaborative process through the platform. Members will be able to propose new policies, discuss changes to existing ones, and gather feedback from different regions. Policy drafts and concept papers will be uploaded to the platform for review and comment, allowing for broader input before final decisions are made at the in-person congress meetings. Real-time voting on policy decisions will be available to ensure that all stakeholders have a voice in shaping the direction of the global lived experience movement.
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Accessibility and Inclusion: The platform will be designed to be highly accessible, featuring screen reader compatibility, multilingual support, and closed captioning for video content, ensuring inclusivity for members with disabilities or those who speak different languages. Customisable user settings will enable individuals to adjust the platform to their needs, provided the digital space is accessible and usable for all participants.
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Ongoing Feedback and Evaluation: the platform will feature mechanisms for ongoing feedback, allowing members to share their thoughts on how the platform works and suggest improvements. Surveys and evaluation tools will help track the effectiveness of virtual collaboration, and member satisfaction can be regularly gauged to make necessary adjustments.
By providing constant access to collaboration and real-time communication, the digital collaboration platform will ensure that the Lived Experience Congress is not limited to its in-person sessions but remains a dynamic and ongoing global network. It will also help facilitate the implementation of international policies and initiatives across all the networks, ensuring consistent and continuous progress throughout the year.
The global database provides a centralised platform to bring information and resources into one convenient location, mapping organisations, initiatives, opportunities, and stakeholders so they are accessible and interconnected in a single system. It functions as both a discovery and coordination tool, enabling individuals and organisations to navigate the lived experience movement with greater clarity and ease. Alongside this, the data collection and reporting ledger introduces a real-time layer of intelligence, capturing activity, engagement, and outcomes to support informed decision-making and system-wide reporting. Together, the database and ledger form a unified infrastructure that increases efficiency, reduces duplication, and strengthens alignment across the lived experience movement at a global scale.
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